Deaf culture

Personal stories and experiences of individuals

“AMaA about being a deaf-blind corporate woman!” “When I was 7, my mom came into my room while I was playing with dolls. She played with me for awhile and then said my name. I looked at her.

“When you get older… you will be going blind,” she said, demonstrating with her hands as she slowly closed her eyes with them.

“What? No! PM_A_THOUGHT see! PM_A_THOUGHT see!” I yelled, standing up and stomping on my toys. I was not ready to accept this fact. I can see perfectly fine, thank you very much.

“Careful, there’s toys there!” she said, worried I was hurting my feet. She thought I couldn’t see the toys there, but I knew because I was just playing with them. “See, you can’t see…”

I was too angry to tell her that she was wrong, that I can see.

aaand scene. That’s how I remembered the night I learned I was going to lose my vision. It seems as though the next day, I had already accepted this as a fact.

And yes, it does get me down that I cannot see as well as others. It makes me mad that y’all can drive and I can’t. One of the personality traits about me is that I am very independent, and being trapped inside my home day in and day out, except for work, drives me bonkers.” https://www.reddit.com/r/IAmA/comments/2s7v7o/amaa_about_being_a_deafblind_corporate_woman/

“Ask HN: I’m a software engineer going blind, how should I prepare?”

“Deaf but not yet blind”

The portrayal of Usher Syndrome and sensory impairments in literature, film, and other media

Contributions of artists and performers with Usher Syndrome to the arts and culture